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Light for Sight 21 was founded in 2011 during a candid discussion that Nikki Hafezi had with her husband, Farhad Hafezi, a keratoconus/cross-linking expert. She read in several scientific publications that the Down Syndrome population was more susceptible to have keratoconus than the general population. So, she asked her husband about why so few people with Down Syndrome are treated by corneal cross-­linking (CXL), and how the Down Syndrome community is notified about this relatively new form of treatment of KC.

Only a few months later due to high demand, the “Light for Sight 21” project expanded to include all children and adolescents with keratoconus and given the general name of “Light for Sight.”

Her simple question is now uniting clinical institutions, research groups, patient organizations and the private sector in achieving the mission to eliminate severe visual impairment among all children and adolescents with keratoconus.